Message Posts

hi Jan, just wanted to share with you that donations are starting to come again.

I had a rough work week but I got a treat from friends, Rosie and Sophia Grace (two little mini nicki minaj girls from Ellen Show) gave me a book signed to Gavin and monetary donation. Her mom also will spread the word!  It completely lifted my spirits and paid of the hardwork.
salSophiGraceRosie

-Sal Mutuc: Aug. 8, 2013


Hey Bong & Janelle, sending love and prayers your way for Gavin.

- Phoebe H: Aug. 20, 2010


Sorry-won’t be able to make it to the fundaraiser, but I will donate!!! Good luck tonight!

- Michelle Hill: Aug. 20, 2010


We’ll all be praying for you Gavin. XOXO Gavin

- sarah: Aug. 20, 2010


We’ll all be praying for you Gavin. Hugs and kisses!

- Colleen Tobiasl: Aug. 19, 2010


Sorry to hear about your experience. Our best wishes for peace, health and love.

- Rob: Aug. 18, 2010


Hello-from your neighbor in 4S-we will be in Carlsbad-prayers and thoughts with you always!

- Michelle Hill: Aug. 16, 2010


Hi, this is Olivia’s mom (child with Canavan – we see you at CCS) – love and prayers to you and we’ll see you fri!

- Jamie Ferrandi: Aug. 15, 2010


Hi Ferd, Jan and Gavin. My wife and I would just want you to know that you are always in our prayers and hoping to see you guys soon.

- Dr. Aldrin Serrano: Aug. 11, 2010


Hello Ferd and Jan! I will continue to pray for Gavin! God is watching over you and your family and your prayers will soon be answered! <3

- Linda Reyes: July 27, 2010


We are Praying for Gavin every day. We think of you often, please call or email if you need anything. New email:[email protected]

- The Hupe Family: July 23, 2010


We are thinking of you all and praying that Gavin will be cured. Jan and Bong, you are both wonderful parents and I pray that God continues to give you strength as you fight . Love you guys!

- Laus Family: July 22, 2010


Hi Gavin, I know you’re not reading this at the moment, but hopefully soon when you’re well and cured. Just want to let you know I’m praying for you. See you soon ;-) Alvin

- Alvin Tayag: July 20, 2010


Jan and Ferd, Please know that our thoughts and prayers are with you. We hope to reconnect with you all soon and meet the little ones, it has been way too long. xoxo

-The Zarraga Family: May 29, 2010

Thank you for sharing you rbeautiful cards with us after our brief encounter late Wed. night. Your family will be in our thoughts and prayers! You are so inspirational!

-Anne Tessaro: April 22, 2010

Jan and Ferd, Loren and I were so happy to meet your beautiful family last week in Florida. Thanks for sharing Gavin’s story. www.caringbridge.org/visit/elliottbenson

-Becky Benson: April 19, 2010

Hello Gavin

-Angels: April 19, 2010

It is great to hear you’re doing well even in the midst of Ferd traveling and Gavin having some extra weaknesses. You are such an inspirational and strong family.

-Susie: March 12, 2010

Give Gavin lots of hugs and kisses for me. <3

-Samantha Karasienski: March 10, 2010

we are working on Tay Sachs disease. But it is a difficult one to defeat because the recombinant enzyme administered cannot cross the blood brain barrier. But there is hope.

-Research on Tay Sachs: March 6, 2010

Jan ferd, Read your article on Facebook posted by another member of the Tay-Sach community. So sorry to hear about Gavin’s diagnosis. It seems we have lots in common. My Grandson Talon is one of the other three kids in Californis with Juvenille Tay Sachs. I’d like to talk. Talon has a site on Caringbridge.com. My e-mail [email protected] .

-Ken Dietz: March 4, 2010.

I read the article that appeared in the San Diego Union Tribune today and was moved and wanted to know more. Your family is in our thoughts and prayers.

-Jocelyn: March 4, 2010.

I cherished every second I got to spend with Gavin when I visited his preschool class on Thursday. XO Gavin and family! I miss you

-Susie: Feb. 27, 2010

No one is so unique to life to escape such things other than chance so we pull together when our loved ones are afflicted as they are our own becaus ..time an unforeseen occurance befall us all…thus we band together as one community as your child IS my child in difficult times. extra hugs tonight Gavin from Jeannie and Phil with lots of love !

-Jeannie M: Feb. 6, 2010

May God bless you and strengthen you little boy! May God heal your child and may you lived a blessed life to talke about God’s wonderful miracles!

-Marcely K: Jan. 30, 2010

I am so sorry to hear about your little man’s diagnosis. Our thoughts and prayers are with you.

-Jane G: Jan. 12, 2010

Jan and Ferd, Bob and I are so sorry to hear about Gavin’s diagnosis, you are such a wonderful family, I miss working with you. Keeping you all in our prayers.

-Alicia J.: Jan. 5, 2010

The most healing remedy aside from prayer posted below.xoxo

-Jeannie M: Jan 2, 2010

have many storys from the hospital’s vantage point. Remember, the best you can give Gavin are lots of laughter from the tip of the heart to the pit of the tummy. xo

-Jeannie M: Jan 2, 2010

Gavin my thoughts and prayers are with you and your family. you are a brave boy and you inspire so many people.stay strong and now we all love you god be with you Gavin

-Jared Campos: Dec. 31, 2009

We live in San Diego and went to Children’s. Dr. Trauner specializes in Tay Sachs. She is a fabulous neurologist. I hope you contact her. Best of luck.

-Ruth W: Dec. 31, 2009

My granddaughter had Tay Sachs and died when she was 9 years old. Like Gavin, she had the “juvenille” form of it. She died at age 9. Most of these angels die at age 1-2.

Ruth W: Dec. 31, 2009

I just saw the news report on Gavin, I’m sorry you’re going thru this. Keep your faith and hope alive. God Bless.

-Elle: Dec. 31, 2009

hows gavin now?

-shereal dahilig aganon: Dec. 28, 2009

God is carrying you Gavin. blessed are the children for theirs is the kingdom of heaven.

-Donny: Dec. 28, 2009

Gavin the little guy, you may not know this now but your courage inspires us all. Those of us who take life for granted are inspired by such a loveable and blessed human being you are. Your mommy and daddy are so proud of you and will for forever touched by your courage as we all are. Keep fighting little man, for no matter what under any circumstance the lord is always with you and lives inside of you forever. May God Bless you and your family

-Matt R: Dec. 22, 2009

so sorry you have to deal with this. I know you would do anything to save your child, just like I would. My son recently got diagnosed w a cancerous brain tumor. There are no guarentees it will never return, as this cancer is deadly and aggressive. The one thing that gives me peace is gods promise of a new cleansed earth ruled by his son Jesus, and all sick ones will be perfectly healthy again. Can you imagine our sons running and playing without pain, or problems? Knowing they were going to enjoy wonderful, healthy lives forever in a garden-like earth? This is what God has promised, and it is a comfort I want to share with you, because knowing this has helped me so much. I look forward to that day, and it will be here soon. my prayers are with you…..

-jeni B: Dec. 20, 2009

my heart goes out to ur family in this time of worry and concerns but i have to believe that Gavin will always be in the care of a Higher Power (GOD)

-Craig McGruder: Dec. 19, 2009

Revelation 21:5, “And the One seated on the throne said: ‘Look! I am making all things new.’ ”

-Dave Edwards: Dec. 18, 2009

Revelation 21:3b,4 gives the following assurance: And God himself will be with them. 4 And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore.”

-Dave Edwards: Dec. 18, 2009

So sorry that Gavin is afflicted with this disease.

-Dave Edwards: Dec. 18, 2009

Know I am praying for you & your beautiful son. We lost our daughter, Riley, to Sandhoff (similar to TS) 11/08. www.caringbridge.org/visit/princessrileybear

-Nicki Luce: Dec. 15, 2009

Ferd & Jan, God’s medicine for life is laughter. The wreath raffle had 7 prizes & what do I do? Draw 8 names. Luckily the 8th winner never found out they lost.

- Ed: Dec. 28, 2009

just wanted to say that I am very sorry and that I too have a child with Tay Sachs. I will be praying for Gavin.

-Lana: Dec. 8, 2009

Thoughts and prayers of your family daily.

-Jeannie and Phil: Dec. 28, 2009

I hope your entire family had a great Thanksgiving. I am very thankful for knowing Gavin and his family!

-Susie Fulton: Nov. 28, 2009

We are at a loss for words for what you are going through with your angel. We are praying for all of you.

-Susie Fulton: Nov. 22, 2009

My thoughts & prayers are with you-You have a beautiful son. Please know that the bible holds out a promise for a world with no more sickness Revelation 21:3,4. <3

-Carolyn: Nov. 20, 2009

Dearest Gavin, You look like such a little angel! My prayers are with you and your family. Love, Darleen Herriman.

-Darleen: Nov. 18, 2009

Gavin-Boy We love you sweetheart..you guys are always in our heart, thoughts and prayers.

-The Gervacios in WA: Nov. 17, 2009

Happy 4th Birthday Gavin!!! You are so loved♥

-Lisa: Nov. 17, 2009

Dear Gavin & Family. Our family and all those at San Rafael pray for blessings upon you in your journey. You are beautiful little boy! God Bless!

-Pidding Family: Nov. 17, 2009

Dear Gavin, Happy Happy Birthday to you! Our family will include you daily and the Mother’s Group at San Rafael will be honored to pray for you!

-Beverly: Nov. 17, 2009

Dear Marquez Family, We are close friends to the Javien Family. You will continue to be in our thoughts and prayers.

The Millora Family: Nov. 17, 2009

Dear Gavin and Family. I am a parishoner at St. Michael’s and a mom. You are in my prayers. God bless you.

- Marybeth: Nov. 17, 2009

Dear GAvin and family, we just learned of your situation and want you to know that we will be praying for you and your family. Happy Birthday, Gavin. God Bless you

-The Schmuttermair Family: Nov. 16, 2009

You and your family are in our prayers. May God bless you with His wisdom and strength.

-Zamora Family: Nov. 16, 2009

We are praying for all of you! Jan & Ferd, your strength is inspiring!

-The McClures: Nov. 16, 2009

We are parishioners at San Rafael and we will be praying for your family. God bless you.

-Maria: Nov. 16, 2009

Gavin & Family you are in our prayer’s. The Lord Is Your Strenght And Song. God Bless.

- Nancy: Nov. 16, 2009

Hi, Gavin and Mom and Dad. We just learned about your situation from our friend at San Rafael Parish. You are now on our prayer list and we will seek answers for you.

-Ann: Nov. 16, 2009

Hi Gavin & Family. My name is Ed. I am a friend of your Uncle Jay. I sent you a birthday card. Hope you like it.

-Ed: Nov. 15, 2009

Happy birthday Gavin. Your in my prayers.

-Abbey: Nov. 12, 2009

his name is read every week in our temple. we pray for his health, and for your entire family

-Shannon: Nov. 8, 2009

I have met Gavin as a nurse that goes to his school to give him a feeding every tuesday-Friday. I fell in love with Gavin right away and he will forever now stay in my heart,

-Susie Fulton: Oct. 30, 2009

know that there is a candle lit for gavin and his family. You are in my prayers.

-Arge Bravo: Nov. 12, 2009

MMBBC Youth Group will have a Christmas Card making at Mira Mesa for Gavin’s fund raising. Email me for details [email protected], I missed the Bible Study two weeks ago, I had the flue. But hope to see you really soon Gavin. Praying for you everyday

-Alvin Tayag: Oct. 26, 2009

hi Bong & Jan, Thank you for welcoming us into your home and for the opportunity to mingle w/Gavin & Bella. I’ll massage his feet any day!! See you again soon.

-Ken + Mich: Oct. 25, 2009

I was happy to see Gavin earlier today, and that he gained weight. Keep your faith alive. You will always be in my prayers. Stay strong and keep believing.

-Gina: Oct. 22, 2009

Bong and Janelle…weOur hearts and prayers go out to all of you, especially Gavin. You are always in our thoughts and prayers.

-Czar Tabilas-Palmeira:: Oct. 25, 2009

Bong and Jan, we are here if you need us. Gavin has been in our hearts and prayers since we heard about his condition. Stay strong and positive, God bless.

-Mike and Guada Calceta: Oct. 21, 2009

god bless you all.. be strong just trust in lord.. we love you … be strong always.. dont lose hope god is good all the time…

- Grace talavera: Oct. 19, 2009

youre in our prayers.. gavin is strong person, he overcome all of this trials, just pray and have faith.. god bless you all and we love you…

- mylene & nelson talavera: Oct. 18, 2009

God is truly the life doctor for he heals all (mental, physical, spiritual, and emotional) Keep the faith for Gavin and your family will always be in our prayers! GOD BLESS!

-Mel Cruz: : Oct. 18, 2009

We will include Gavin, his sister and both of you in our prayers. Most of the time, we cannot understand God’s plan for us.

-Bro Joe and Sis Rhoda J: Oct. 14, 2009

though we are separated by an ocean you guys are in my prayers. We love you guys very much. Gav will overcome this, he is your strong boy.

-lise: Oct. 13, 2009

God bless you guys. Have faith.

-Kiki: Oct. 13, 2009

Hi Ferd & Jan: God- always help you to become healthy and strong and never give up. We always pray for him and we hope there is a miracle happen to otoy Gavin.

-auntie nita & aika: Oct.12, 2009

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One Comment → “Message Posts”


  1. Olivia, fellow yogi ;)
    9 months ago

    Hi Jan,

    Thank you for sharing with me the story of your beautiful family and your amazing son Gavin. Sending lots of love and healing energy to you all. Namaste my friend.

    Reply