Miles of Madness for TSD Awareness: Year 3

It’s been three years since I joined the battle against Tay-Sach’s disease.  I vowed to raise awareness and to find a cure by starting “Miles of Madness for TSD Awareness” back in 2011.

Tay-Sach’s Disease  (TSD) is a fatal genetic disorder that causes progressive destruction of the central nervous system resulting in the early death of children.  Even with the best care, most children with TSD die early in childhood, usually by the age of 5 (source CTSF).

Not Gavin Marquez, he is eight years old, and strong with no sign of slowing down!  Obviously, young Gavin is no stranger to battling adversity and trials.  He has taught us how to be brave and to believe, even when it feels like we’re about to be defeated.  He is doing what others said he could not.

Gavin and his family are truly an inspiration.  They always remind me that anything is possible and never to lose hope.  I’m ready to take on bigger and better challenges.  Today, Gavin continues to battle this rare disease, which day by day takes a toll on his cognitive and motor function.  There is no known cure or treatment, and research is underfunded.  Your donation is one step closer to funding research and finding a cure for this fatal disease.

I’m inspired By Gavin, and want to inspire others to “get up and do something.” Please help us continue to find a cure.  It is within reach.

I will match every 1 dollar donated with mileage and gratification.  ($1 = 1mi of swim, bike, or run)

This year, I will race both an Ultra Marathon & an Ironman event.
Please join our team as I represent “Hope for Gavin” in our upcoming races:


  • Avalon Benefit 50 mile | Ultra Marathon | Catalina Island, CA —>   Jan 11, 2014
  • LA Marathon | Los Angeles, CA  —————————————-> March 9,2014
  • Ironman California 70.3 |  Triathlon | Oceanside, CA  ————>  March 28,2014
  • Vineman 140.6 | Triathlon | Napa Valley, CA————————-> July 26,2014
  • Oakland Festival  |  Triathlon |   Oakland, CA————————-> Auguest 31, 2014

Let’s all join Jan and Ferd in their journey to save their son, to embrace hope, and to ultimately find the cure to Tay-Sachs disease.  With everyones thoughts, prayers, contributions, and fate, Gavin will win this race.  On behalf of Jan, Ferd, Audrey, and Gavin, who will soon be cured and become a triathlete,  I thank you again for all your support.  Hope to see you in any of the races above. We wish you a wonderful and healthy New Year.

“Love recognizes no barriers.  It jumps hurdles, leaps fences, penetrates walls to arrive at its destination full of hope.”  - Maya Angelou

Sal “Vader” Mutuc