Archives

Mar 20 2012
Highlights from the TSGT Progress Update – February 2012 - 0
Feb 26 2012
New Update on Gavin!-The Middle of Winter with Spring Around the Corner - 0
Nov 16 2011
Finally, an update! - 2
Sep 14 2011
The Hope for a Cure is Getting Closer - 0
Jul 28 2011
Gavin is finally home! - 3
Jul 27 2011
Visiting Gavin - 0
Jul 26 2011
Gavin @ Children’s Hospital- San Diego (Last day here hopefully) - 1
Jul 24 2011
Gavin @ Children’s Hospital-San Diego Update! - 1
Jul 22 2011
Gavin is finally back home!!! - 4
Jul 21 2011
Update: Leaving Washington DC - 0
Jul 21 2011
Update from Children’s in DC - 1
Jul 20 2011
Day 23 @ Children’s Hospital in DC - 1
Jul 19 2011
Day 20-22 @ Children’s Hospital in DC - 2
Jul 17 2011
Day 18 & 19 @ Children’s Hospital in DC - 5
Jul 14 2011
Day 17 @ Children’s Hospital in DC - 2
Jul 12 2011
Day 15 & 16 @ Children’s Hospital in DC - 4
Jul 12 2011
Day 14 @ children’s hospital DC - 0
Jul 10 2011
Day 13 @ Children’s Hospital in DC - 0
Jul 9 2011
Day 13 @ Children’s Hospital in DC - 0
Jul 8 2011
Day 12 @ Children’s Hospital in DC - 4
Jul 7 2011
Day 11 @ Children’s Hospital in DC - 0
Jul 6 2011
OR visit postponed - 0
Jul 6 2011
Day 10 @ Children’s Hospital in DC - 5
Jul 5 2011
Day 9 @ Children’s Hospital in DC - 4
Jul 5 2011
Gavin enters the OR today - 0
Jul 4 2011
Day 8 @ Children’s hospital in DC - 1
Jul 3 2011
Day 7 @ Children’s Hospital in DC - 4
Jul 3 2011
Day 6 @ Children’s Hospital in DC - 0
Jul 2 2011
Day 5 @ Children’s Hospital in D.C. - 0
Jun 29 2011
Day 4 at Children’s Hospital in DC - 1
Jun 28 2011
Day 3 @ NIH - 0
Jun 27 2011
Day 2 @ The NIH - 0
Jun 27 2011
Gavin is finally here at the NIH- Bethesda, Maryland - 0
Jun 23 2011
Breaking News: HOPE in less than 15 months!!! - 0
Jun 16 2011
Guam Publication – The High Life June 2011 - 0
Jun 14 2011
Golf for Gavin was a huge Success!!! - 0
May 2 2011
Great News for Gavin from the NIH - 2
Apr 22 2011
TAY-SACHS GENE THERAPY CONSORTIUM UPDATE - 0
Apr 1 2011
Off We Go to Boston - 1
Apr 1 2011
Gavin Gets a New Recliner - 1
Feb 15 2011
Gavin Gets Botox - 0
Dec 21 2010
Orlando, Florida Here We Are!!!!! - 0
Dec 1 2010
Gavin Is Finally Home!!! - 0
Nov 23 2010
Bowl for Hope: Team Gavin was a huge SUCCESS!!! - 0
Nov 17 2010
Day 6… still at the hosptial - 1
Nov 14 2010
Gavin celebrates his birthday at the hospital - 2
Sep 25 2010
Gavin Loves His Nurses - 2
Aug 27 2010
Meet Gavin - 0
Aug 24 2010
A "Night of Hope for Gavin" was truly a success!!! - 0
Jul 23 2010
We now have the vest thank God to the Sheppard Family - 0
Jun 9 2010
24 Hour EEG for Gavin - 0
Jun 1 2010
Updates from our Tay Sachs Disease Conference Part 2 - 0
Apr 29 2010
The Pulmonologist Visit - 1
Apr 23 2010
Gavin @ the ER on 4/21/10 - 1
Apr 18 2010
Updates from our Tay-Sachs Disease Conference- Part 1 - 0
Apr 9 2010
Day 2 of our Tay-Sachs Conference in St. Petersburg, Florida - 1
Apr 6 2010
Off to St. Petersberg, Florida - 1
Mar 9 2010
It has been a year since the diagnosis - 0
Jan 18 2010
I Invite you all to see the upcoming film, "Extraordinary Measures" - 0
Jan 7 2010
The Gait Trainer Workout - 0